My Melmoirs

As another summer draws to a close I feel beyond fortunate that I've had a healthy few weeks...despite the usual blood clots, GI issues, blah blah blah. I've been holding my own, keeping my head above water and feeling more like myself than I have in a looooong time.  I credit my progress to a few things:  1) My GI doc figured out what was throwing my pancreas out of whack and had some easy solutions (still a work-in-progress),  2) My trusty  Xango Juice  (pricey, but it helps me every time nothing else will), and  3) Some good old fashioned luck.  The only reason I didn't write about it sooner was for fear of jinxing myself.   Not much could be better than feeling well, except that it allowed me the opportunity to take part in an exciting clinical drug trial--a trial I've been waiting over 2 years for! While I'm not allowed to go into detail about the study nor mention the drug(s) by name, I can say that it's a CF gene-specific study that ...

It's been a while since I've updated about my health, so I will take a moment to get everyone back up to speed:   The last time I posted a health update, I was taking three oral/nebulized antibiotics to combat a 'new' bacteria that had taken up residence in my lungs; knowing that this bacteria was bad and would be hard to treat. I felt like the antibiotics helped a little, but still didn't feel great and haven't felt up to exercising in almost a month. Literally 2 days after finishing said antibiotics (a.k.a. last weekend) I caught a virus.  The virus ignited my inflammatory process, causing my blood clots to regrow on one side.   About 4 days after catching the virus my lungs began to quickly decline.   Damn it!!! I was scheduled for a follow-up with my regular CF doc next Wed., but had to move the appointment up to yesterday as a "sick visit" with a covering CF doc. That's where things complicated.  At yesterday's appointment it was...