My Melmoirs

Yesterday was rough. For some mysterious reason my body went completely haywire causing my pain to sky rocket, my heart to go bananas, and a slew of unpleasant symptoms. I barely moved all day, which is not like me at all and made the day drag.  The best parts of my day were a visit from my hubby (with more clothes) and a relaxing reiki session that gave me a brief reprieve from the pain.  They've been drawing my blood every 6 hours to see if my blood is thinning enough. The good news is that I finally reached a "therapeutic" heparin dose last night. The very next blood draw my blood was too thin so they had to stop the heparin for a few hours and have restarted it at a lower dose and are trying to figure out the best blood thinner for me to go home on. From a CF standpoint I'm doing okay. The CT scan did show some infection so I began taking 2 oral antibiotics Tuesday night. I have yet to do chest physical therapy or any nebs since I've been here but we...

Guess where I am.... If you guessed the hospital you get a gold star! Sunday I had written about feeling "off" and going to call the doc on Monday (yesterday). Thank goodness I did because it turns out I have "several" blood clots in both of my lungs...yup, didn't see that coming! I went into the hospital thinking it would be a normal CF appointment (with the exception of x-rays and a CT scan) and was completely blindside by a hospital admission and a voyage into unchartered territory. While I have had blood clots before, I've never had them in my lungs (pulmonary embolisms.) I guess stopping my blood thinner wasn't such a great idea after all :-/ Treatment has been a little tricky because the heparin (blood thinner) that treats them the fastest has caused me to hemoptysize (cough up blood). Pulmonary embolisms may be a new rodeo for me but this complex balance of thinning my blood without causing pulmonary bleeding is nothing new. The hema...

I know I'm not alone in saying that it's been a crazy September! The summer came to a screeching halt, fall sports were underway, and kids went back to school--oh, and my world felt turned upside down. Many warned me that it would be a big adjustment when Myles started full-time kindergarten, but I totally thought I had it under control; I even gave myself a pat on the back when I didn't shed a single tear on his first day. Boy was I wrong! For the past 5 1/2 years it's been Myles & I all-day everyday and raising him was my primary purpose. So it's been an adjustment re-configuring: my "purpose", daily routine, the loss of control (for a self proclaimed control freak), and time management. I had a mental list of all the things I was going to accomplish when Myles started school, but by the time I finished my daily treatments (i.e. vest, nebs, meds, exercise, etc.) there wasn't time to get much of anything done. This made me resent the t...