My Melmoirs

Who knew a three-letter word could be so life-altering? A few months ago I had the privilege of celebrating another birthday; a time when I reflect on the year past and the year that lies ahead.  Despite being one of the hardest years medically, the past year was a beautiful one. There were hard times, there were good times, and most times my world felt full of love. One thing that stood out the most, however, was one little question I kept asking myself more and more often: Does this bring me joy? I found myself asking this question for decisions both big and small: what to eat, what to buy, what to wear, which direction to drive, relationships, social media, etc. And you know what? It was life. changing. While there will always be obligatory duties to stay alive and pay the bills, focusing more on what brought me joy and, more importantly, scaling back on the things that didn't, truly increased the beauty of my world. It silenced the back-and-forth interna...

Guess where I am... I am elated to announce that today I am [finally] reentering the study/drug trial (woo hoo!) What was supposed to happen back on January 4th, 2016 is now happening on July 27th, but as the old adage goes, better late than never. A few weeks ago the pharmaceutical company actually removed me from the study because I had been sick for so long, but my AMAZING CF doc pleaded to get me reinstated and succeeded. I am beyond grateful for him and that my health has stabilized. To feel  good is something I never take for granted and I thank my lucky stars every day...multiple times a day. I credit my upswing to a little luck, a lot of vitamin D (from the sun of course) and changing my daily mantra to include the phrase 'I am healthy'. The mind is a powerful thing folks. Life. Is. Good.

'What is this world coming to?' is a question I bet most of us have been asking ourselves lately. You can bury yourself under the biggest rock and still not escape the tragic hate-spewing that's running rampant in the world. There's too much of it weighing heavily on my heart and I feel a desperate need to combat the negative with some positive. What's the opposite of hate and violence? Love and kindness.  Therefore let's spread more of it; like a pebble dropping into a lake, if we all make our little ripples they will combine to make a bigger ripple overall.  I sat pondering ways to spread joy and for some bizarre reason the first thing that popped in my mind was 'Christmas in July' which led to this idea... All are welcome to join me in a toy drive for Boston Children's Hospital. For the rest of July I will be collecting new packaged toys, art supplies, movies and books to deliver to the hospital. We all know it sucks to be in the hospital a...